Owen's Transplant

We're heading to Minneapolis for consultation with Dr. Tolar. He is going to be the one to determine exactly the treatment course for Owen.  We're supposed to fly there Thursday night and Fly home Friday night.  We will be there for barely 24 hours.  We will get to stay in the Holiday Inn.  We get a $50 per diem every day for Owen and 1 parent.  So we should be good for all three of us.  I'm kind of nervous about travelling with Owen and his feeding pump and other stuff.  Its going to be really for everyone involved.  We're still trying to work out all the procedures he needs and had scheduled before the U of MN called and told us when to be there.  ARGH!!! Why can't they remember we're people with lives already scheduled?  My son needs transfusions and gtube replacements and lots of other things.  I wish they could realize that they shouldn't just call and say be here on Nov 12th at 10:30.