We've finally gotten a diagnosis for my little Owen. I'm glad. But somehow, I don't feel really confident in it. Maybe its just been so long in coming that its anticlimatic, but after all the genetic testing and talks of going to Duke for a specialist, it just seems way too pat. It just seems way too easy. It is an easy (so to speak) treatment. You just get an antiviral for about 6 weeks or 2 months. Its given IV and Owen has a port now. There can be some side effects, but still, all this is better than dealing with a primary bone marrow deficiency for the rest of our lives or something even worse.
http://www.bing.com/health/article/mayo-126612/Cytomegalovirus-CMV-infection?q=cytomegalovirus&FORM=FFF
http://www.rxlist.com/cytovene-drug.htm
So, if anyone is reading, there is some info on both the CMV and the Ganciclovir.
At least its something treatable and shouldn't cause problems for the rest of his life.
No comments:
Post a Comment